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horizon usher foundation benjamin demarquilly syndrome retinite pigmentaire retinopathie pigmentosa ush2A gene recherche

WE HELP THE MEDICAL RESEARCH ON
USHER SYNDROME & RETINITIS PIGMENTOSA
CAUSED BY USH2A GENE 

 " A WAVE OF HOPE "

ABOUT HORIZON

Non profit foundation.

Created in January 2022.

Objective : Helping medical research on
   Usher Syndrome & Retinitis Pigmentosa

caused by USH2A gene.

WHAT IS USHER SYNDROME ?​

Rare genetic disease that affects both hearing and vision. It causes deafness or hearing loss and an eye disease called Retinitis Pigmentosa (RP) which cause a :

Degenerative vision

Diminution of night vision

Lost of daytime vision

Extrem photosensibility

oeil retinite pigmentaire horizon usher foundation usher syndrome ush2A benjamin demarquilly
benjamin demarquilly horizon arc en ciel yeux ebloui bateau aveugle blind

Usher Syndrome affect around

1 per 30.000 people.

This is the most frequent cause of double
oculo-auditory impairment.

WHO ARE WE &
WHAT DO WE DO ?

 

We are first of all a foundation created with the aim of raising awareness & helping medical research related to Usher Syndrome & Retinitis Pigmentosa.

We were born after having proposed a unique project to the emblematic brand Giorgio Armani.

This project was created to give Benjamin the opportunity to explore as much as he can before his incurable retinitis pigmentosa takes his vision away.

horizon usher foundation benjamin demarquilly retinitis pigmentosa model international modelo mannequin osteopathe arras armani

BENJAMIN

Osteopath & International model

Founder & CEO of Horizon Usher Foundation

Suffering of Retinitis Pigmentosa

With the aim to help him finding the cure of his disease, we have decided to set up a team of five friends to cross the Atlantic Ocean by sail which was one challenge that Benjamin's wanted to accomplish in his life. 

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