C O L L A B O R A T I O N S
The Usher Syndrome Society is a non-profit that uses storytelling through the arts, educational events, and collaboration to raise public awareness and funds for research to find treatments and a cure for Usher syndrome (USH).
The USH Society gives a face and a voice to those living with USH, making this invisible disease visible.
Their mission is simple :
AWARENESS • RESEARCH • CURE
Nancy Corderman decided to found Usher Syndrome Society in 2012 after learning that two of her four children were diagnosed with Usher Syndrome and therefore are progressively losing both their eyesight and hearing...
The Usher Syndrome Society was born out of the recognition that a cure for Usher syndrome needed to be found as soon as possible. Realizing that the two most important ways to accelerate research are through educating the public about this orphan disease and raising funds, the Usher Syndrome Society began using photojournalism and educational events with the hope of bringing USH to the forefront of rare disease research.